BOARD members, advisors and financials

Florian S. Eichler, MD. - Director of the Leukodystrophy clinic at the Massachusetts General Hospital; Associate Professor of Neurology at Harvard Medical School. Executive Committee member of the Global Leukodystrophy Initiative.
Steven J. Gray, PhD. - Associate Professor, Director, UTSW Viral Vector Facility, Dept of Pediatrics, Dept of Molecular Biology, University of Southwestern Medical Center.
Marc P. DiFazio, MD - President, Medical Staff, Medical Director, Ambulatory Neurology, Children's National Hospital System.
Wendy K. Chung, MD PhD - Dr Chung is a clinical and molecular geneticist and the Chief of the Department of Pediatrics at Boston Children’s Hospital and Harvard Medical School.

Oscar Sloan - Co-Founder, President. Mr. Sloan co-founded the Foundation in 2015. Mr. Sloan’s experience is in sales and marketing and has owned and managed his business for 40 years.
Michele Sloan - Co-Founder, Treasurer. Mrs. Sloan has extensive background in finance including valuation and feasibility.
Mari Galvin - Secretary. Ms. Galvin has extensive non profit legal background representing hundreds of non profits assisting in trust and estate management
Christopher Drescher - Board Member. Corporate Strategist, Business Developer focused on scientific discovery. Thirty years of advisory expertise related to scientific advancement, grant agreements, and related negotiations.
Gerald Clemmons, CPA, EA - Board Member. Extensive experience in IRS regulations and non profit management.
Diana Gooley - Board Member. Finance Advisor and program development strategic guidance with focus on digital technology
Robert Ziarko - Board Member. Former Logistics Manager at General Motors, Bob spends his retirement as Chairman of our Fundraising committee. He has extensive experience with fund raising predominantly with St. Judes Hospital.