CONTACT & subscribe
To contact us, please email or write to us to submit questions or requests to our organization. We would love to recruit more people who are committed to finding a cure for H-abc/Tubb4A related leukodystrophy. We are eager to help in any way possible, whether you are a patient, caregiver, researcher or medical professional looking for answers.
Email: contact@h-abc.org
Mailing addresses:
15901 Sycamore Lane, Rockville MD 20853
2900 Westchester Avenue, Suite 402, Purchase NY 10017
600 Smithfield Place, The Villages, FL 32162
1209 Whispering Oaks Drive, DeSoto, TX 75115
YOUR JOURNEY
Tell us your story and journey discovering your diagnosis. We want to understand the hurdles better to help and data is paramount to better understanding.
subscribe to our newsletter
Please subscribe to our newsletter for updates by completing the form below.