Help H-ABC Families Fight for a Cure
Your Compassion and Support Make All the Difference
On the surface, parents of children with H-ABC/Tubb4a related leukodystrophy appear to live like everyone else, but pull back the curtain and it’s a very different story…
They’re exhausted after spending countless hours conducting research online, driving to appointments, and talking to health-care providers.
They’re overwhelmed by the dozens of prescriptions used to combat their child’s symptoms.
They’re terrified that any moment with their child could be their last.
And yet these parents put on a brave face because there’s no other option.
Coping with a rare disease is never easy, but it’s even harder when your child is the one suffering from it.
Each day, parents of children with H-ABC have to fight.
They fight to stay positive.
They fight to remain strong.
They fight to keep going.
It’s a constant battle, and it’s one that can’t be fought alone.
These parents need all the support and compassion they can get. They need hope for a cure.
And that’s something you can provide today.
By donating any amount, you can help fuel research for a cure—one that children and families suffering from H-ABC so desperately need.
These Families Deserve Hope for a Cure
Families that are not so different from your own…
In most cases, children with the disease appear perfectly normal and healthy at birth. When they start exhibiting symptoms later on, parents quickly discover that getting an accurate diagnosis is a fight itself, considering many doctors don’t even know what H-ABC is.
The disease progresses slowly, taking away the child’s ability to walk, eat, bathe, and dress without assistance. Parents do whatever they can to improve their child’s quality of life, knowing that other body functions will continue to decline until it’s too late…
No child should be robbed of their future.
No parent should have to watch their child deteriorate before their eyes.
The sooner we find a cure, the sooner we can stop its progression.
We just need your help.
There’s No Time to Lose…
Sadly, many children have already lost the fight against H-ABC, leaving an emptiness in their wake. Every day this disease goes untreated, another family receives the heartbreaking news that their child has only weeks left.
Those affected by H-ABC can’t afford to wait any longer, and they shouldn’t have to.
With every donation received, we get one step closer to finding a cure. And you can play an important part in that. You can demonstrate your support and compassion for these families.
You can give them the hope they deserve.
Here’s how…
Click the button below to donate to H-ABC research.
Give any amount either online or via mail. No act of kindness is too small!
Know that your contribution will help restore hope in families not so different from your own.
By donating today, you can give families across the globe hope for a cure. You can become a hero not only to children suffering from H-ABC but also to the families fighting alongside them.