National H-abc/Tubb4a Awareness Day

Written By Michele Sloan

May 2 is now the official National Tubb4a Awareness Day! Thanks to Sarah Marta, one of our patient moms who pursued the appropriate approvals. This day was chosen as it represents the first official day that the tubb4a mutuation was announced as the cause of the condition!

Michele Sloan
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*** September is Leukodystrophy Awareness Month ***
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First clinical trial for H-abc/Tubb4a Leukodystrophy