Testimony directly from one of our Leukodystrophy patients!

It is unusual to meet a Tubb4a patient who is so articulate! Killian does a fantastic job of telling us more about his leukodystrophy on Utube, and what better timing than during September Leukodystrophy Awareness Month! Thank you Killian, you are an amazing young man!

https://youtu.be/hGTRVM21Sdo?feature=shared

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Featuring another family recently diagnosed........

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*** September is Leukodystrophy Awareness Month ***