Elouise had hip surgery on July 13 and is doing remarkably well. She will be bed bound until end of August. One of the side effects of H-ABC is orthopedic related, in her case, her hip was partially displaced. All is well now and working on PT.
June 10 fundraising event
We had a hugely successful fundraiser on June 10 within our community, we raised over $35,000. Our event involved golf, tennis followed by an evening gathering with a live band. Thank you to all of our Manor Country Club friends, members and residents for your help and donations.
See below for a video and photos of the event:
Upcoming Event
With help from our local community, we are planning a fundraising event at Manor Country Club in Rockville, Maryland on June 10, 2016. For more details please contact us.
Fund raising
We are actively reaching out to our community to coordinate events to raise awareness and for funding for our foundation. The support we have had from the community has been amazing, and we are very thankful for everyone's help
Surgery
We were told by orthopedic doctor that Elouise will need to undergo hip surgery to realign her left hip joint. Will likely need to schedule during summer break. Our hope is this will help her regain alignment to assist us with helping her to walk, but also to avoid further imbalance in her posture.
Prayers
My little girl prayed last night by herself for the first time. She clasped her hands together, bowed her head and said with her broken speech, "Dear God, please let me walk, in the name of Jesus I pray, Amen." She said it three times...