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Michele Sloan Michele Sloan

Scoliosis

Scoliosis is a side effect of H-abc. The underlying condition dramatically advances scoliosis. Below is a picture before and after surgery

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Michele Sloan Michele Sloan

Another successful fundraiser!

We raised over $40,000 in our Play for Elouise 2018 event on June 1!  Thank you everyone for all your help and support!   What a great afternoon and evening!

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Michele Sloan Michele Sloan

Elouise Dancing with Dad!

 

Elouise can now stand, dance and walk with this cool new tracking system! See her dance with her Dad in the video: 

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Michele Sloan Michele Sloan

Another successful year!

We are very proud to announce we raised over $100,000 in 2017.  This month we wrote a check in this amount to the Children's Hospital of Philadelphia Foundation to continue the research for a cure!  Thank you everyone for your commitment to us.

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Michele Sloan Michele Sloan

NBC Washington News Story

On September 15, NBC Washington's Doreen Gentzler did a special story on Elouise and Dr. Vanderver. See below for the full news video: 

http://www.nbcwashington.com/news/health/Race-to-Cure-Rare-Disease-That-Attacks-Childrens-Brains_Washington-DC-444752033.html

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