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Global Genes LIVE!


Global Genes LIVE!

A RARE Patient Advocacy (un)Summit

Join Global Genes for a variety of engaging and educational online events, meet-ups, workshops and performances September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community, stakeholders, and allies with opportunities to connect and engage with each other through interactive activities paired with educational programming. 

  • Participants will gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and strategic ways to accelerate change.

  • Be sure to visit our (un)Summit store to purchase your swag bag! $5 of your purchase will be donated to support rare disease families through RARE Patient Impact Grants.

Register here!

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July 18

Living Rare, Living Stronger 2020

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March 19

Barry Manilow tribute band for benefit of Foundation to Fight H-abc