Mira is 5 years and has been the light in Chloe's life ever since. Mira loves Fuggler teddys and watching cartoons on her IPad. Mira first started showing signs when she was 3 months old and with much investigation and through genetic Testing mom and dad got the diagnosis in May 2022 and it flipped their whole world upside down. There wasn't much if any information until they found the Foundation to Fight H-ABC who been helping them understand what to expect in future. It was hard at first especially when they discovered there is no current cure but Mira hasn't let anything stop her smile!
Mira is constantly fighting and gives us all hope and our biggest hope is that in the future there is a cure!
